Narcolepsy & Sleep Disorders Support Group – Online
About This Group
The Narcolepsy & Sleep Disorders Support Group provides peer support for individuals living with narcolepsy, idiopathic hypersomnia, insomnia, and other sleep-wake disorders. Through the Narcolepsy Network and related organizations, this group connects people who understand the daily impact of living with a sleep disorder — from managing excessive daytime sleepiness to navigating work, relationships, and daily life with an often-invisible condition.
What to Expect
Support groups are available online and provide a confidential, understanding environment where participants share their experiences, discuss treatment options, and offer encouragement. Topics may include medication management, coping with fatigue, advocating for workplace accommodations, navigating the diagnostic process, and maintaining relationships. The group also provides access to the latest research updates and clinical information about sleep disorders.
About the Narcolepsy Network
The Narcolepsy Network, founded in 1986, is a national nonprofit dedicated to supporting people with narcolepsy and related sleep disorders. They offer support groups, educational webinars, advocacy, and an annual conference. Project Sleep also operates a free Sleep Helpline connecting people with resources, support groups, and certified sleep specialists.
Meeting Details
Format: Online support groups and regional chapters
Cost: Free
Registration: Visit narcolepsynetwork.org to find support groups, or call the Sleep Helpline
Who This Group Is For
This group is for anyone living with a sleep-wake disorder, including narcolepsy (Type 1 and Type 2), idiopathic hypersomnia, chronic insomnia, and related conditions. Family members and caregivers are also welcome.
Contact Information
Narcolepsy Network: 1-888-292-6522 (toll-free) | narcolepsynetwork.org
Project Sleep Helpline: 1-800-819-2043 (Monday–Friday 9am–4pm ET)
Project Sleep Email: helpline@project-sleep.com
Project Sleep Website: project-sleep.com
All group discussions are confidential. These organizations are committed to supporting everyone affected by sleep disorders.
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