National Organization for Rare Disorders (NORD) — Patient Services & Community
About This Group
NORD operates a Patient Services helpline, online rare-disease community, and directory of patient-advocacy organizations covering more than 7,000 rare conditions.
What to Expect
Patient Services helpline for information, financial assistance programs, rare-disease database, and community connections.
Meeting Details
- Format: Online
- Coverage: Nationwide – available in all 50 states
- Cost: Free
- Registration: Call 1-800-999-6673 or visit rarediseases.org
Who This Group Is For
Patients, families, and caregivers affected by any rare disease.
Contact Information
- Phone: 1-800-999-6673
- Email: orphan@rarediseases.org
- Website: https://rarediseases.org
All services are free and confidential.
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