Global Genes — Rare Disease Patient Advocate & Online Community
National
About This Group
Global Genes operates the Rare Portal online community and Rare Concierge service, connecting rare-disease patients and families with information and support.
What to Expect
Rare Portal online community, Rare Concierge one-on-one navigation service, educational webinars, and toolkits.
Meeting Details
- Format: Online
- Coverage: Nationwide – available in all 50 states
- Cost: Free
- Registration: Visit globalgenes.org
Who This Group Is For
Rare disease patients, caregivers, and patient-advocate organizations.
Contact Information
- Phone: 1-949-248-7500
- Email: rareconcierge@globalgenes.org
- Website: https://globalgenes.org
All services are free and confidential.
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